World Autism Awareness Day 2025 : Why Parental Support Matters More Than Ever

Wednesday, April 2, 2025, 11:11

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The rain drummed softly against the windowpane as Yamini sat on the edge of the bed, staring at the floor. Her hands clutched the edge of her saree, twisting it absently. It had been months since the diagnosis, but the words still echoed in her ears-Autism Spectrum Disorder. It was as if her whole world had collapsed in an instant.

She had tried to be strong. She had smiled when relatives gave their unsolicited advice-

"She will be fine, just give her more attention."

"This is because you didn't pray enough."

"Maybe you should take her to that healer at your native home."

She wanted to scream. Instead, she merely nodded, swallowing her grief. But inside, she was drowning. Day by day, she withdrew, barely eating, barely speaking. Nights were worse-silent sobs into the pillow, guilt gnawing at her. What had she done wrong? Why their daughter?

Meanwhile, Advaith coped in his own way-by staying away. He buried himself in work, stayed longer at the office, and even when home, he was either glued to his laptop or found an excuse to step out. Conversations between them had become mechanical.

And little Vedika, oblivious to their turmoil, lived in her own world-lining up her toy blocks, flapping her hands when excited, humming the same tune for hours. Her laughter still rang through the house, but Yamini and Advaith had stopped hearing it.

Until the accident.

It was a minor fall. Vedika had climbed up the kitchen counter when Yamini had turned away for a moment, and she slipped. A loud thud, a piercing wail, and the next thing Yamini knew, she was rushing her child to the hospital.

As she sat in the sterile hospital room, watching Vedika sleep, a tiny bandage on her forehead, something inside her shifted. Her daughter had been hurt, and instead of fear for the injury, all she could feel was how deeply she loved her.

She needed her mother. Not a grieving, guilt-ridden shadow.

That night, after tucking Vedika in, Yamini walked into their bedroom where Advaith sat scrolling on his phone. She stood there, waiting. When he didn't acknowledge her, she spoke.

"We need to talk."

Advaith sighed, putting his phone down. "Yamini, I know what you're going to say. I've been thinking-maybe we should find a special school for Vedika. Somewhere they can handle-"

"No." Yamini's voice was firm. "We are her parents. We need to handle it first."

Advaith rubbed his temples. "I don't know if I can."

Yamini sat beside him, searching his face. "Neither did I. I've been running away too, in my own way. But she's ours, Advaith. We don't get to choose only the easy parts of parenting. She needs us, not just teachers or therapists. She needs her Amma and Appa."

Advaith looked away. "I need time."

"You have it. But promise me you'll try."

He hesitated before nodding. "I will."

For the first time in months, Yamini exhaled without feeling the weight of the world on her chest. It was a start. Not the end of their struggles, not an immediate fix, but a start.

And for now, that was enough.

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Upon discovering your child has autism, it's understandable to feel a whirlwind of emotions, from grief and anger to fear and stress. You might worry about the future, the strain on your relationship with your spouse, and the pressures that lie ahead. However, it's crucial to remember that autism is a condition that affects many children, and there are countless resources available to support you and your child. From advocacy organizations to support groups and mental health professionals, help is at hand to navigate this journey.

Understanding Autism's Impact

The diagnosis of autism in a child can significantly alter the dynamics of a family. For siblings, this may result in stress, anxiety, and a range of emotions including guilt and resentment. Often, siblings might not express these feelings to avoid adding to their parents' burdens. They may also take on more responsibilities, potentially feeling overlooked as their parents focus on the needs of their autistic sibling. Despite these challenges, siblings often develop positive traits like empathy and responsibility.

When Yamini and Advaith received Vedika's diagnosis, their immediate reaction was grief and denial. Yamini withdrew emotionally, while Advaith avoided home, seeking solace in work. Their inability to process their emotions together placed a strain on their relationship, highlighting how a diagnosis can shift family dynamics and create emotional distance if not addressed with support and understanding.

Early Intervention And Support

In the early years following a diagnosis, it's vital to explore all available treatments and therapies, such as applied behavioral analysis, speech therapy, and occupational therapy. Ensuring your child receives the necessary support early on can greatly influence their development. Joining local support groups can also provide a sense of community and shared understanding, offering both emotional and practical assistance. Keeping detailed records of your child's development and medical appointments is also beneficial, as it helps build a comprehensive understanding of their progress over time.

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Yamini initially struggled to accept Vedika's condition, believing that nothing could change their reality. However, after Vedika suffered a minor accident, Yamini's perspective changed-she realized that more than external interventions, what Vedika needed most was a mother who was present and supportive. This pivotal moment reinforced the importance of early parental involvement in a child's development.

Communication And Social Skills

Teaching social skills is crucial for children with autism to help them form fulfilling relationships. Parents can model social behavior, explain interactions in detail, and practice role-playing to help their child understand and engage in social situations. Organizing playdates with children from support groups can also offer a safe environment for practicing social skills, while giving parents an opportunity to share strategies.

Navigating Parental Challenges

The notion that parents are to blame for their child's autism is outdated and incorrect. Autism is rooted in genetics and involves multiple factors. Acknowledging this can help parents move past feelings of blame and focus on supporting and appreciating their child's strengths. The stress of raising a child with autism can also impact marriages, with some studies suggesting a higher divorce rate among parents of children with autism. However, this is not universally true, and strong partnerships can emerge resilient.

Advaith initially recommended sending Vedika to a special school, hoping it would ease their burden. But Yamini reminded him that their daughter needed them as parents first and foremost. This conversation marked the beginning of Advaith's slow journey toward acceptance, illustrating that both parents must be actively involved in their child's growth and well-being.

In conclusion, Autism profoundly affects families, reshaping their lives in many ways. Despite the challenges, there are numerous resources and strategies to support children with autism and their families. From early intervention to fostering social skills, parents can navigate this journey with hope and support. Embracing the strengths of children with autism and working together as a family can lead to fulfilling and joyful experiences.